News Release

Wednesday, December 19, 2001

Contact: George Stinnett, CHKD, (757)668-7424

Program To Discuss Rare Genetic Diseases

Hampton Roads, Va--Children's Hospital of The King's Daughters and the Norfolk/Virginia Beach chapter of Hadassah, a volunteer Jewish women's organization, will present a free, public program on rare genetic diseases on January 15, 6:45-9 p.m., at the Virginia Beach Central Library, 4110 Virginia Beach Boulevard. The program, entitled "Hadassah Presents, It's In The Genes" will focus on several genetic diseases, including Tay-Sachs, Gaucher, Canavan and Cystic Fibrosis. It will include discussion about how genetic diseases are passed from generation to generation, what a carrier is, importance and availability of pre-natal testing and carrier tests available. Legislative action to prevent discrimination and biomedical ethics also will be addressed. Among the featured presenters are: Virginia Proud, MD, CHKD pediatric geneticist; Yosef Friedman, Rabbi, B'nai Israel Congregation; Barbara Fleck, CHKD genetics counselor; Rachel Zenner, director, American Affairs/Domestic Policy Department at Hadassah in New York; and a patient with a rare genetic disease. A grant from the Genzyme Corporation, a biotechnology company, was provided for this program.