Family and Patient Support

Sickle Cell Support Services

CHKD recognizes the impact of Sickle Cell Disease on the entire family. Our comprehensive Sickle Cell Program was designed to meet the medical and psychosocial needs of the patient and family as they cope with this disease. There are many psychosocial support services provided by various team members to help patients and families understand and manage the disease and its impact on the family. We recently developed a Sickle Cell Transition Program to help young adults transition from the pediatric program to adult care within the community. The program is coordinated by a clinical social worker. Additional programs are listed below.

Community Events

Involvement in community events provide the opportunity to reach out to our community.

Family Fun Night

A variety of activities held at night. Look for announcements.

Family Picnic

Picnic traditionally held at Mount Trashmore each fall. Halloween Party and Pirate’s Party held in the clinic after normal business hours.

Grandparent's Dinner

Grandparents are invited to enjoy dinner and fellowship with their grandchildren and other patients and families.

Music and Art Enrichment

This weekly program is held in the clinic and taught by school teachers.

Transition Forum

This educational and social program is designed for Sickle Cell patients, ages 17-21, who are preparing to transition to adult care. Family participation is encouraged.

For more information on any of these events, please call (757) 668-7243.