Comprehensive Neurofibromatosis Clinic

The only one of its kind in Hampton Roads, CHKD's Comprehensive Neurofibromatosis Clinic provides patients and families with increased access to specialized support for their complex medical needs. Tailored to the individual, our team will offer attention to the full range of potential symptoms that arise in this population, including neurological, developmental, dermatological, surgical, oncological, behavioral, rehabilitative, and more.

Your Appointment: What to Expect

  • Prior to your appointment, please complete and bring our Patient Information Questionnaire and copies of any relevant medical records or prior imaging results
  • We will ask you questions about your child’s birth, developmental and medical history and family history as well as current and past symptoms of NF
  • There will be a comprehensive medical (including skin) and neurological evaluation at each visit.
  • An individualized plan for further evaluations and treatments will be created, which may include:
  • Referrals, appointments, and testing will be scheduled and facilitated and we will continue to monitor and treat your child and family.