About Neuromuscular Scoliosis
Neuromuscular Scoliosis is a curvature of the spine caused by the spinal cord, brain and muscular system. These curves are more likely to progress even in to adulthood. Children with this condition do not have any pain and may experience issues with poor balance and coordination when moving around.
Evaluation
Your specialist may order a variety of studies to evaluate your child’s spine. These tests may include X-rays, MRI or CT scans. Your specialist may also send you to the laboratory to have your child’s level of Vitamin D checked.
Once your child’s tests are complete, your specialist will review the plan of care for your child. Additionally your child may require a multidisciplinary team that may include pulmonary, cardiac, and general surgery to prepare a treatment plan.
Treatment
Bracing can be an option for smaller curves. For non-ambulatory patients, wheelchair modifications can be beneficial for posturing support.
Some patients can benefit from physical therapy. Some patients will require surgical intervention to correct their scoliosis with a posterior spinal fusion.
The goals for these patients are to prevent further progression of their curve, reduce pain, and improve sitting balance.
If your specialist has recommended your child will need to have a surgery you will need to schedule your child for the pre-operative spinal fusion class.
We understand that preparing for surgery can be hard. At CHKD, our spine program coordinator is a registered nurse and will guide you throughout the process.
