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CHKD Blog

About Craniofacial Parent Advisory Council

About Craniofacial Parent Advisory Council

CHKD's Craniofacial Parent Advisory Council consists of current and former patients and family members who have experienced care at our Cleft and Craniofacial Center. Council members provide feedback to ensure the craniofacial center consistently offers the best care possible. They also directly support other patients and families undergoing treatment. All members undergo an application process before being selected for the council.

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  • Blog Posts By: Craniofacial Parent Advisory Council

    Two boys helping mom prepare a smoothie at home Posted By: Craniofacial Parent Advisory Council, Joanna Knight
    Tuesday, May 3, 2022

    How-To: Soft Food Diet for Kids

    How do you prepare your child to adopt a liquid or soft food diet when recovering from oral surgery? CHKD parent Joanna Knight shares her tips. Read full post>>

    Pregnant woman talking with her doctor Posted By: Craniofacial Parent Advisory Council, Jenna Caldwell
    Friday, April 8, 2022

    Preparing for a Baby With Cleft Lip and Palate

    After a routine 20-week ultrasound revealed her baby had a cleft lip and palate, Jenna wondered what to do next. Here's what she learned along the way. Read full post>>

    A 6 year old African-American child in a children's hospital, lying on a hospital gurney wearing a surgical cap and hospital gown, looking up at her doctors, smiling. Posted By: Craniofacial Parent Advisory Council, Rebecca Dean
    Wednesday, March 30, 2022

    Positive Attitude

    Some days won't be easy, as parent blogger Rebecca Dean explains, but it's worth keeping a positive attitude for our kids from day one. It could change your outlook and theirs for life. Read full post>>

    Healthcare worker giving formula to an infant who has a cleft palate. Posted By: Craniofacial Parent Advisory Council, Joanna Knight
    Wednesday, February 23, 2022

    Coping with Baby’s Inability to Breastfeed

    When Joanna realized she couldn't breastfeed her cleft-born child, she felt a sense of loss. Read how she coped and adapted to new ways of feeding her baby. Read full post>>

    Mom and dad holding their infant daughter with corrected cleft lip Posted By: Craniofacial Parent Advisory Council, Jenna Caldwell
    Tuesday, January 25, 2022

    Early Intervention: Children with Craniofacial Disorders

    Early intervention services help families of kids with craniofacial disorders feel more prepared and equipped to provide for them. Read one mom's experience. Read full post>>