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About Craniofacial Parent Advisory Council

About Craniofacial Parent Advisory Council

CHKD's Craniofacial Parent Advisory Council consists of current and former patients and family members who have experienced care at our Cleft and Craniofacial Center. Council members provide feedback to ensure the craniofacial center consistently offers the best care possible. They also directly support other patients and families undergoing treatment. All members undergo an application process before being selected for the council.

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  • Blog Posts By: Craniofacial Parent Advisory Council

    Caldwell-Cruise Control-Small Posted By: Craniofacial Parent Advisory Council, Jenna Caldwell
    Tuesday, September 6, 2022

    Cruise Control

    The first year of your child’s cleft lip and palate treatment is a whirlwind of appointments, surgeries, and post-ops. Going from multiple appointments a month to none is what mom Jenna Caldwell calls “cruise control.” Read full post>>

    Portrait of a group of medical practitioners wearing face masks while standing together in a hospital. Posted By: Craniofacial Parent Advisory Council, Jenna Caldwell
    Wednesday, July 20, 2022

    A Team of MVPs

    In this blog, cranio mom Jenna Caldwell shares how CHKD's craniofacial team can help your family navigate cleft lip/palate, craniosynostosis, and more. Read full post>>

    A close-up of cheerful little girl with Down syndrome Posted By: Craniofacial Parent Advisory Council, Joshua Lassiter
    Monday, June 6, 2022

    A Family Matter: Navigating Health Conditions

    As uncle to a child with cleft lip and palate, Josh has often pondered how to navigate his nephew's diagnosis. Read his suggestions in this blog. Read full post>>

    Two boys helping mom prepare a smoothie at home Posted By: Craniofacial Parent Advisory Council, Joanna Knight
    Tuesday, May 3, 2022

    How-To: Soft Food Diet for Kids

    How do you prepare your child to adopt a liquid or soft food diet when recovering from oral surgery? CHKD parent Joanna Knight shares her tips. Read full post>>

    Pregnant woman talking with her doctor Posted By: Craniofacial Parent Advisory Council, Jenna Caldwell
    Friday, April 8, 2022

    Preparing for a Baby With Cleft Lip and Palate

    After a routine 20-week ultrasound revealed her baby had a cleft lip and palate, Jenna wondered what to do next. Here's what she learned along the way. Read full post>>

    A 6 year old African-American child in a children's hospital, lying on a hospital gurney wearing a surgical cap and hospital gown, looking up at her doctors, smiling. Posted By: Craniofacial Parent Advisory Council, Rebecca Dean
    Wednesday, March 30, 2022

    Positive Attitude

    Some days won't be easy, as parent blogger Rebecca Dean explains, but it's worth keeping a positive attitude for our kids from day one. It could change your outlook and theirs for life. Read full post>>