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Cystic Fibrosis Patient

Cystic Fibrosis Center

CHKD’s Cystic Fibrosis Center provides integrated, multidisciplinary care for children and adults with cystic fibrosis (CF) and their families, including promoting normal growth and development, slowing the progression of cystic fibrosis disease and preventing, as well as treating, complications.

Our program is accredited by the Cystic Fibrosis Foundation for clinical care and research. We address the physical and emotional needs of the entire family and encourage parents to be active partners in managing their child's health.

We care for children and adults with confirmed diagnosis of cystic fibrosis and babies with a positive newborn screening of cystic fibrosis.

Our CF Center brings together experienced pediatric practitioners in the pulmonary and infectious disease specialties, as well as nutritionists, respiratory therapists, social workers and nurses. We tailor each child’s treatment plan according to their specific needs. Learn more about cystic fibrosis here.

Our Physicians

Our pediatric physicians are board-certified in both general pediatrics and pulmonology or infectious diseases. Our consultants are board-certified in their respective specialties and have a dedicated interest in the treatment of patients with CF. Our physician for adult patients is board-certified in critical care, pulmonary and sleep medicine. They are assisted by nursing staff and various technical and office personnel, all of whom are trained to care for the special needs of children.

Clinic Times and Location 

  • Families: We see families at the CHKD main hospital site in a clinic dedicated solely to CF care. Clinics are Tuesday and Friday mornings for pediatric patients.
  • Adults: Adults are seen Tuesday afternoons at the CHKD main hospital site.

    Education Services

    CHKD offers educational services through the hospital school program -- a state operated program that has teachers and educational consultants who provide year-round educational services for patients, ages 2 through 21. They work with physicians, nurses and local schools to help children with chronic illnesses continue their studies. The program offers a continuum of services that cover inpatient status and outpatient clinics. Learn more about CF education services at CHKD here.

    CF Parent Advisory Group 

    The Cystic Fibrosis (CF) Advisory Group is a committee of parents and adult CF patients that provide feedback to the CHKD CF Center. The group works with the CF team to advance the practice of CF care and to improve the quality of care for patients. 

    The group’s prime objective is to enhance and optimize the medical care and quality of life for people diagnosed with cystic fibrosis. In doing so, its members promote an open learning environment, improved communication between patients and providers and personal empowerment. 

    The group's members, all parents of children with CF or adults with CF, share insights and information about their experiences, successes and failures. 

    Goals of Cystic Fibrosis Advisory Group  

    • Empower individuals with cystic fibrosis and their families 
    • Open communication and active participation by patients and families in the provision of health care 
    • Continually improve the quality of care 
    • Support ongoing research 
    • Confront cystic fibrosis with optimism, love, compassion and solidarity 

    Insurance and Referral Information

    Make sure your referral has not expired. (Many are good for only 30 days, so check yours before you come to your appointment.) If your referral has expired, call your primary care physician and explain your situation. In most cases, your primary care provider will write you a new or extended referral.

    Bring the referral with you to the appointment. If you do not have a referral, or if the referral you have is expired, your HMO will not pay for your appointment.

    We offer in-depth information about insurance in our billing and insurance section.

    Program Location

    Contact Us

    Phone: (757) 668-7137

    Email the Cystic Fibrosis Program

    Yoga for Cystic Fibrosis

    The Yoga for Cystic Fibrosis DVD can be purchased by contacting Connie Sigley at (757) 668-7137.

      Need Personalized Assistance?

      The CF Foundation Compass program offers a personalized patient assistance program. You can call them at (844) 266-7277